Kelley Newman

Kelley Newman lymphedema ambassador NLN advocate patient

Instagram: Kinewman

I was diagnosed with secondary bi-lateral lower extremity lymphedema in 2011.  After being diagnosed with invasive cervical cancer I had a radical hysterectomy.  They removed 37 lymph nodes removed in my pelvis, and then I had chemotherapy and radiation.  After many years of occupational therapy, MLD, and compression, my condition worsened and I began experiencing cellulitis on a fairly frequent basis.  Through research and referrals, I finally found a surgeon that was able to perform a Vascularized Lymph Node Transfer on my right leg. Last year in August I had almost 4 liters of fluid removed from the same leg.  Since these procedures I have gone down 2 sizes in my compression garments, lost 2 pant sizes, and am able to live a more active life.  I can exercise again without pain and discomfort.  I have learned so much over the course of the last 5 years and want to do everything that I can to advocate for myself and others with this condition.